Too Pooped to Pop

Every once in a while I have the urge to talk about ME.  “Uh oh”, you’re thinking, here she goes again . . .

P1020589Today I’m too pooped to do anything other than focus on me. It’s the only subject I’m an expert on and don’t have to “think”.

When I stopped taking a dopamine enhancing drug early last year I crashed.  The exhaustion that accompanies, or perhaps drives, Fibromyalgia/Chronic Fatigue hit me like a tidal wave.  (Fibromyalgia and Chronic Fatigue Syndrome* seem to be over-lapping conditions for many people.  The verdict is out whether it is one and the same or different maladies).

It’s so hard to explain what it is like to feel exhausted all the time.  I’m not sleepy, not tired, not fatigued.  It’s an exhaustion, a heaviness that seeps up from the bone marrow.  It saps me, not only of physical energy but of mental energy too.  I’ve been staring at the TV all day, sitting like a lump, no energy to get up and even do things I enjoy.

I often explain the fatigue as like running through quick-sand that is up to my eyebrows.  I can push through it – only for a while . . .

The exhaustion is invisible.  The loss of memory is often public.  Yesterday I called 3 different clients the wrong name.   My brain is in gear but the gears don’t mesh.

I’m blessed that I have a profession where I’m in control of the schedule.  Many people are not that fortunate and have to go on disability, IF they can get it or it’s available.  Men, I believe, often have it harder.  When they have to give up a job, retire the  stigma is harsher for not working, not being “productive”.  And because fibromyalgia/chronic fatigue are disproportionately a “woman’s disease” men often do not get appropriate treatment or are labeled as malingering.

Estimates range from 2% to 4% of the population has Fibromyalgia/Chronic Fatigue.  Chances are you or someone you know is living with the symptoms right now.

*Chronic fatigue syndrome has eight official symptoms, plus the central symptom that gives the condition its name:

  • Fatigue
  • Loss of memory or concentration
  • Sore throat
  • Enlarged lymph nodes in your neck or armpits
  • Unexplained muscle pain
  • Pain that moves from one joint to another without swelling or redness
  • Headache of a new type, pattern or severity
  • Unrefreshing sleep
  • Extreme exhaustion lasting more than 24 hours after physical or mental exercise

The Common threads between Fibromyalgia and Chronic Fatigue

5 thoughts on “Too Pooped to Pop

  1. “I often explain the fatigue as like running through quick-sand that is up to my eyebrows. I can push through it – only for a while . . .”
    Good analogy — mine is walking/wading through jello without a spoon.
    I’ll love to make a trade with you for the sleeping hours. I’m more awake at 10 pm than 10 am. I’ve been researching circadian rhythms, cortisol and sleep patterns. Several articles used fibromyalgia and/or bipolar as explanatory manifestations of sleep disorders.
    Sorry you’re in the fatigue mode. I know how hard those quick-sand/jello days can be.

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  2. So tired all this week and can’t escape it either J/J. Nothing helps any of us………….ans then I am up all night. Tired but can’t sleep. What a joke huh?

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    1. Ah Mo,
      My irony is that I sleep all night, wake up exhausted, then take a two hour+ nap, wake up exhausted, then go to bed and sleep. I’m blessed that I am not conscious (of being exhausted) for at least 12 hours!

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  3. Amen, Peachy. I know exactly where you are coming from. I think the combination of doctors we have talked about could make a difference. Have you tried Savella for the pain? Wellbutrin for the (almost) energy? My fibro fog is so bad it scares me. Truly. I guess we deal with it day by day, actually minute by minute. I go so blank sometimes that I don’t remember something that I scare myself. Nothing is easy. I must have inherited it all from you. Much love, Peachy Keen, Jr.

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