I look normal, I act normal (relatively normal). However, I feel exhausted much of the time, my body aches from head to toe and my brain sometimes has trouble remembering or concentrating. Please don’t tell me to exercise more, eat better, try acupuncture or go to a new doctor. After 20 years I’ve tried just about everything there is to try that I can afford, swallow or legally do.
I don’t even care anymore what you call it: Fibromyalgia, Chronic Fatigue, malingering . . . it’s just tiring being tired much of the time. I push through it otherwise I’d have no life. But the price for pushing can be days of crashing so I pick and choose my commitments.
No one knows what causes it or how to make it better. Looking back, I think I’ve had it my whole life. But I’m lucky because it didn’t become full-blown until I was an adult. For teens and young adults it’s really hard. Read this article by teens and 10 things they want the public to know. Teens who live with chronic illness and the 10 things they want you to know.
I’ve blogged about it before:
I prefer not to talk about it, write about it, dwell on it. It is what it is and I’m blessed that it’s not life threatening. But today is World Awareness Day for neuro-immune illnesses of ME/Chronic Fatigue (CFS), Fibromyalgia (FM), Lyme disease, and Multiple Chemical Sensitivity (MCS). It’s an opportunity to raise public awareness of these conditions that impact millions all over the world.
It’s a good bet that you or someone you know has one of these invisible conditions . . . if you didn’t before, you do now.