Patient, Heal Thyself: I should get an honorary M.D.

Tallulah Pacehead

I’ve not been functioning up to par.  As most of you, who have followed my blog, know I’ve been having “heart pacemaker issues”.  I’ve sparingly shared the other “happenings” to only a few people because they seemed too bizarre, even for me!  Here’s the list:

  1. After adjusting Tallulah Pacehead, my pacemaker, at least 6 times my light headedness and chest pain kept getting worse.
  2. Adding insult to injury I couldn’t stay awake!!!!!!!!  It was waaaaaaaaaaaay beyond just being tired.  If I sat down and blinked I’d fall asleep, stopping at a stop signal I had to fight to stay awake. I was afraid to drive.  I’d fall asleep for a total of about 8 hours a day (not including 7-8 hours a night)!  The good news is I wasn’t depressed and did intermittently wake up . .. before I fell back asleep . . .
  3. And lastly, I was eating OBSESSIVELY, COMPULSIVELY, non-stop, uncontrolled addictive eating.  I know addiction when I see one but this was the first time I knew it when I BE one.
My fibro doctor, who is wonderful, said I had all the symptoms of narcolepsy. (I always pictured narcolepsy as falling forward or down without warning into a deep sleep, not drifting off)
My cardiologist suggested an angiogram, my internist suggested a c-pap machine and Lindora Weight Control. None of those seemed to be the answer to me as ALL my cardio tests were negative and I’d already gone to Weight Watchers and tried c-pap years ago when I was just exhausted all the time, not falling asleep uncontrollably.
I was so desperate last weekend I started Googling everything I could think of and I do mean everything.  I found the causes:
  • The same blood pressure meds I was now on put me in the hospital in 2009 with a dangerous heart arrhythmia.
  • The medication Mirapex (dopamine enhancer), I’ve been taking for fibro (that literally gave me my life back) can cause NARCOLEPSY and COMPULSIVE ADDICTION to Gambling, Sex or Eating.
Dr. Judith stopped the medications and I’m getting better!!!!!!!!

The only downside is that the morning after I can no longer say

 I was asleep and don’t remember the gambling, sex or food.  

Pacing My Pacemaker, Tallulah Pacehead – (winter)

Tallulah Pacehead, my pacemaker

Tallulah keeps working overtime and I feel her like a leaden pain in my chest, short of breath and exhausted.

I’ve been back to the cardiologist to have Tallulah simmer down a bit and not bump up my heart beat when it’s not necessary, like dusting or emptying the dishwasher . . . (hmmmm, maybe I shouldn’t be doing strenuous things around the house . . . )

Whatever they did with her computer made it worse so I was back to the cardiologist two days later.   After talking at length to The Physician’s assistant, she went out,  came back  and said the doctor didn’t know what to do next.  (He’s an expert in the area of electrophysiology . . .)

I jokingly replied,  “Tell him to get in here and cure me”.  No sooner were the words out of my mouth and she had left the room I felt the rush of tears.  Tears that seemed to come from nowhere.  I struggled to regain my composure. (In the past I’ve cried in front of too many doctors who dismissed my feelings or leave because they were uncomfortable)

I was, obviously, feeling much more vulnerable than I had been consciously aware of.

With fibromyalgia I know there is always that possibility of feeling better the next day, always the possibility of science coming out with more information and better medications and I know it’s not life threatening.

My heart, as I age, becomes more and more dependent on the pacemaker, on something foreign implanted in my body.  They are the same tears I had in my early days of fibromyalgia when no one knew what it was or what to do about it and doctors were just stabbing in the dark.  I feel like I’m being stabbed again.


Mechanical beats

Winter of my discontent

Heart felt discomfort

If you want to read more about Tallulah and see her pictures cut’n’paste  Pacemaker, Tallulah Pacehead in the search block at top of blog

Should I get a tattoo on my pacemaker scar?

I’ve decided to get a tattoo over my pacemaker scar.

shared this with a friend who suggested I check with my cardiologist before I did anything rash.  Google was faster, and possibly a more reliable resource for fashion, than a cardiologist. I googled: “Can I have a tattoo with a pacemaker.”  I am not the only one who wants a tattoo on their pacemaker scar – HUNDREDS of inquiries.

Do you have any idea how MANY tattoos there are to choose from?  Here are a few possibilities that might reflect my personality.

Apparently there are a couple of potential problems for having a tattoo done over a pacemaker scar:

  • The electromagnetic (EMI) of the tattoo tool interferes with the pacemaker’s function,
  • The possibility that since pacemaker wires are near the skin they might accidentally get damaged in the process.
  • The tattoo machine needs to be 6 inches away from pacemaker site which would put my tattoo on my belly button . . . or worse.

None of those problems seem as insurmountable as this warning:  “When you get old the tattoo will be all wrinkly”

I’m getting a fake stick-on tattoo.

Click on the links below to see related posts:

Contest, Name My Pacemaker, latest entries

Pacing My Pacemaker: Tallulah Pacehead