Tag Archives: Chronic Fatigue

Sneek a Peek into my Pooped-out Sketchy Life

I’ve hit a wall – the fibro has flared it’s ornery self and striped me of energy.  My creative output is a bit puny.

The PROBLEM? –  No one can tell and I ain’t getting no sympathy.  I try not to be a whiner because I am sure others are as tired of my being tired as I am. This is the one place I can moan and grown cuz I know most of you won’t read it and are only interested in pictures of nude people . . .

charcoal sketch, 15 minutes

 

My Sketchy Life – hatch, hatched, hatching

Ai yi yiii – ever look up a word in the on-line “Urban Dictionary”?

I looked up “hatch” and was “blown away” by the uses . . . many of which I can not put in print on a G-rated blog . . . most of which I had never heard of nor heard spoken.

Why look up “hatch”, you wonder (or not)?  In art class the focus was on hatching – an art technique where lines are drawn in various forms & intensities to create shapes & shadow.

These two quick sketches were done prior to Easter.   Eureka! I thought: Hatching and eggs were perfect for an Easter blog post.

Then I got “hatched” – another fibromyalgia flare-up and I missed a week’s worth of art classes.

I’m still not feeling good and not pleased health issues keep hatching . . . but this chick got off her fibro-inflated rear and went to class this week.  

HatchVerb – To lose it; to get wound up over something; to be upset.

I’ve been hatching . . .

P.S.  Thanks Peggy A. for doing all the scheduled posting on CATNIPblog!  

O’ Woe is Me and my Rule of Halves (parenthetically speaking)

My dear Curious to the Max followers,

I imagine there are millions of you (I have a big imagination) who wait with bated breath and quickening heart beats for my posts – I shall call you Group Numero UNO.  You are keenly aware (due to your breath and heart rhythm) I’ve been bloggingly absent.  The rest of you (group 2, small “g”) are scratching your heads (or other parts) and wondering what I’m talking about because your lives, breath and hearts have gone on nicely without my posting.

For Numero UNO:  I just have lost my mojo, my energy, my focus – not interested in writing, reading, gardening, e-mailing, blog posts started and abandoned . . .  I’m giving credit to a fibromyalgia flare-up because fibromyalgia should be good for something.

For the second group: I am LOST, DEPLETED, SUFFERING and you probably don’t care . . .

On a serious note (not that I wasn’t serious before) fibromyalgia along with many other chronic conditions has a mind of it’s own and takes over at unexpected and unpropitious times.  After over 20 years of living with this condition I’ve still not got the hang of it.  When I feel decent I go, do, get overly involved and then crash for days, sometimes weeks (or months, but who’s counting).

The BACK half
The BACK half

To better manage what energy I have I’ve decided to do half of the ten things I currently need or want to do:

  1. Complete half the alphabet for the on-line daily blogging alphabet posting challenge. (I’ve half a mind not to even do the challenge this year and repost what I wrote LAST year).
  2. Brush half my teeth each day (I’ll alternate halves – half in the morning and half before bed)
  3. Clean and dust the half of the house I can’t reach.
  4. Stop watching the Super Bowl at half-time.
  5. Eat half the pan of brownies I’m making (half today and half tomorrow).

That’s half of my plans so I’m not going to write the other five.  

My New Motto (you can borrow it):

Live half my life with gusto, let the other half rest.

"This woman is half-baked as ever . . . "
“This woman is half-baked”

 

 

 

Frankly Freddie – I found a cure for my human!!!

My Dear Human Beings and other critters,

My human has been too tired to go on walks.  All she wants to do is sit around and I’m getting bored keeping her distracted by petting me.  She blames Fibromyalgia/chronic fatigue but I’ve long suspected that she just needs a new career that is exciting.  I found the perfect cure – FOR EVERYTHING THAT AILS HER .

11796206_835121679964536_7560255879812816373_n
The CURE

There’s a woman in England who  (instead of moping around like my human being)  got a pair of feathered fans to do a routine in a bar that was holding a cabaret night.

She said: “It was nerve-wracking but exciting . . .  I felt alive. . . . Even though she’s not completely cured, her chronic fatigue only flares up every two or three months – lasting at most for a couple of days. “

She’s got big plans for the future . . . She said: “I have signed up with the alternative model agency Ugly, in London and hope to start appearing in magazines and adverts.”  (I didn’t tell my human being about “Ugly” because I’m not sure what kind of magazines and adverts want “ugly” . . . )

Freddie Parker Westerfield, CDT RET
Freddie Parker Westerfield, CDT RET

My human thinks all this is just a ploy to get her to take me on walks.  I told her if she didn’t believe me to read this:  

Woman Bedridden With Depression And Fatigue Turns Her Life Around With Burlesque Dancing

 

 

The Ultimate DYI – I’ll make me a new pea brain

As my fibromyalgia/chronic fatigue symptoms go unabated I have asked my doctor Patricia Ahearn repeatedly to get her lobotomy certificate.  I’m sure there is week-end or on-line training for doctors.  She’s a very caring person so it’s been hard to understand why she’s been stalling.

Maybe she’s been waiting for this new research?!!!!!!

hmmm . . . speed up the evolutionary process . . . we could still rule the world . . 

Researchers Grow Nearly Complete Human Brain in Ohio Lab

“An almost complete version of a tiny human brain has been grown in a U.S. lab in a move that could bring major strides to the treatment of neurological diseases, a scientist says.
Rene Anand, a professor at Ohio State University, has grown in a dish a brain equal in maturity to that of a five-week-old fetus, his university reported.”

“It not only looks like the developing brain, its diverse cell types express nearly all genes like a brain,” Anand said.”

“Around the size of a pea, the brain in a lab dish includes multiple cell types, all major regions of the brain and a spinal cord, but lacks a vascular system, the university said.” 

“It was grown from human skin cells and is claimed to be the most complete brain of its type grown yet.”

AND!!!!!

With the new 3D printing technology I might be able to make me new brain, each morning, right at home.

Being tired is exhausting

I look normal, I act normal (relatively normal)However, I feel exhausted much of the time, my body aches from head to toe and my brain sometimes has trouble remembering or concentrating.  Please don’t tell me to exercise more, eat better, try acupuncture or go to a new doctor.  After 20 years I’ve tried just about everything there is to try that I can afford, swallow or legally do.

I don’t even care anymore what you call it: Fibromyalgia, Chronic Fatigue, malingering . . . it’s just tiring being tired much of the time.  I push through it otherwise I’d have no life.  But the price for pushing can be days of crashing so I pick and choose my commitments.

Judy's Journal, Mixed Media, Collage
judy’s Journal, Collage

No one knows what causes it or how to make it better.  Looking back, I think I’ve had it my whole life.  But I’m lucky because it didn’t become full-blown until I was an adult.  For teens and young adults it’s really hard. Read this article by teens and 10 things they want the public to know.   Teens who live with chronic illness and the 10 things they want you to know.

I’ve blogged about it before:

The Mask of Invisibility and me

Fibromyalgia, Dx: Hysterical Middle-Aged Woman’s Syndrome

I prefer not to talk about it, write about it, dwell on it.  It is what it is and I’m blessed that it’s not life threatening.  But today is World Awareness Day for neuro-immune illnesses of ME/Chronic Fatigue (CFS), Fibromyalgia (FM), Lyme disease, and Multiple Chemical Sensitivity (MCS). It’s an opportunity to raise public awareness of these conditions that impact millions all over the world.

It’s a good bet that you or someone you know has one of these invisible conditions . . . if you didn’t before, you do now.

“R” is for Running low on petrol

Have you noticed that I’ve been amusing myself writing poems lately?  (If you haven’t noticed that is evidence you are not reading my blog as often as you should be!)

My chronic fatigue has reared its “rear”.  Sitting and moving my fingers on the keyboard, one at a time, is about all the physical energy I have had to expend.  (mental energy is another matter . . .)

There once was a  lass

who ran out of gas

As her windshield grew hazy

she became quite lazy

removing the rust from her a_ _

"I hope you didn't hear that!"
“I hope you didn’t hear that!”
http://www.a-to-zchallenge.com/
http://www.a-to-zchallenge.com/

EXCELLENT presentation on Brain research & Chronic Pain conditions – Stanford University

If you have a brain in your head WATCH this!   Important information for everyone, whether or not you or anyone you know has a chronic pain condition (including – MCS, irritable Bowell, TMJ, Interstitial Cystitis, Back pain etc.).  It’s well worth your time.

Although the focus is fibromyalgia Sean Mackey, M.D., Ph.D explains how the emotions, the workings of the brain impact our physical well-being.

His presentation is 51 minutes long and then takes questions and answers.

Rosemary Lee, Seeking Equilibrium posted this on her excellent blog Seeking Equilibrium.  Rosemary keeps up with the latest research and I highly recommend her blog

Too Pooped to Pop

Every once in a while I have the urge to talk about ME.  “Uh oh”, you’re thinking, here she goes again . . .

P1020589Today I’m too pooped to do anything other than focus on me. It’s the only subject I’m an expert on and don’t have to “think”.

When I stopped taking a dopamine enhancing drug early last year I crashed.  The exhaustion that accompanies, or perhaps drives, Fibromyalgia/Chronic Fatigue hit me like a tidal wave.  (Fibromyalgia and Chronic Fatigue Syndrome* seem to be over-lapping conditions for many people.  The verdict is out whether it is one and the same or different maladies).

It’s so hard to explain what it is like to feel exhausted all the time.  I’m not sleepy, not tired, not fatigued.  It’s an exhaustion, a heaviness that seeps up from the bone marrow.  It saps me, not only of physical energy but of mental energy too.  I’ve been staring at the TV all day, sitting like a lump, no energy to get up and even do things I enjoy.

I often explain the fatigue as like running through quick-sand that is up to my eyebrows.  I can push through it – only for a while . . .

The exhaustion is invisible.  The loss of memory is often public.  Yesterday I called 3 different clients the wrong name.   My brain is in gear but the gears don’t mesh.

I’m blessed that I have a profession where I’m in control of the schedule.  Many people are not that fortunate and have to go on disability, IF they can get it or it’s available.  Men, I believe, often have it harder.  When they have to give up a job, retire the  stigma is harsher for not working, not being “productive”.  And because fibromyalgia/chronic fatigue are disproportionately a “woman’s disease” men often do not get appropriate treatment or are labeled as malingering.

Estimates range from 2% to 4% of the population has Fibromyalgia/Chronic Fatigue.  Chances are you or someone you know is living with the symptoms right now.

*Chronic fatigue syndrome has eight official symptoms, plus the central symptom that gives the condition its name:

  • Fatigue
  • Loss of memory or concentration
  • Sore throat
  • Enlarged lymph nodes in your neck or armpits
  • Unexplained muscle pain
  • Pain that moves from one joint to another without swelling or redness
  • Headache of a new type, pattern or severity
  • Unrefreshing sleep
  • Extreme exhaustion lasting more than 24 hours after physical or mental exercise

The Common threads between Fibromyalgia and Chronic Fatigue