I’ve written or spoken about my journey with fibromyalgia, the 40+ doctors, tens of thousands of dollars of tests and doctors telling me that nothing was wrong while handing me a psychiatric referral.
This Ted video got my attention. I hope it gets yours because it’s likely you or someone you know has other invisible disorders such such as fibromyalgia, IBS, migraine, interstitial cystitis, vulvodynia and ME/CFS which affect millions and have been largely ignored by the NIH.
“Jen Brea’s Outrageously Successful Chronic Fatigue Syndrome (ME) TED Talk”
Despite my own struggles, I’ve been blessed with relatively mild symptoms and the ability to lead a fairly high functioning life. Long ago I lost count of all those I know, worse off than me, who have “untreatable” or invisible illnesses – friends, former clients, internet blogfriends, children and many who follow my blog
To all of you who are on similar journeys – – you are in my prayers. It’s not a cure but it’s all we’ve got . . . for now.