Tag Archives: chronic illness

Invisible Illness – Prayers in search of “Cures”

I’ve written or spoken about my journey with fibromyalgia, the 40+ doctors, tens of thousands of dollars of tests and doctors telling me that nothing was wrong while handing me a psychiatric referral. 

Difference in Reactions to Fibro and Pacemaker

Fibromyalgia: Hysterical Middle-Aged Woman’s Syndrome

This Ted video got my attention.   I hope it gets yours because it’s likely you or someone you know has other invisible disorders such such as fibromyalgia, IBS, migraine, interstitial cystitis, vulvodynia and ME/CFS which affect millions and have been largely ignored by the NIH.

17 minutes

“Jen Brea’s Outrageously Successful Chronic Fatigue Syndrome (ME) TED Talk”

Despite my own struggles, I’ve been blessed with relatively mild symptoms and the ability to lead a fairly high functioning life. Long ago I lost count of all those I know, worse off than me, who have “untreatable” or  invisible illnesses – friends, former clients,  internet blogfriends, children and many who follow my blog  

To all of you who are on similar journeys – – you are in my prayers.  It’s not a cure but it’s all we’ve got . . . for now.

 

 

 

Being tired is exhausting

I look normal, I act normal (relatively normal)However, I feel exhausted much of the time, my body aches from head to toe and my brain sometimes has trouble remembering or concentrating.  Please don’t tell me to exercise more, eat better, try acupuncture or go to a new doctor.  After 20 years I’ve tried just about everything there is to try that I can afford, swallow or legally do.

I don’t even care anymore what you call it: Fibromyalgia, Chronic Fatigue, malingering . . . it’s just tiring being tired much of the time.  I push through it otherwise I’d have no life.  But the price for pushing can be days of crashing so I pick and choose my commitments.

Judy's Journal, Mixed Media, Collage
judy’s Journal, Collage

No one knows what causes it or how to make it better.  Looking back, I think I’ve had it my whole life.  But I’m lucky because it didn’t become full-blown until I was an adult.  For teens and young adults it’s really hard. Read this article by teens and 10 things they want the public to know.   Teens who live with chronic illness and the 10 things they want you to know.

I’ve blogged about it before:

The Mask of Invisibility and me

Fibromyalgia, Dx: Hysterical Middle-Aged Woman’s Syndrome

I prefer not to talk about it, write about it, dwell on it.  It is what it is and I’m blessed that it’s not life threatening.  But today is World Awareness Day for neuro-immune illnesses of ME/Chronic Fatigue (CFS), Fibromyalgia (FM), Lyme disease, and Multiple Chemical Sensitivity (MCS). It’s an opportunity to raise public awareness of these conditions that impact millions all over the world.

It’s a good bet that you or someone you know has one of these invisible conditions . . . if you didn’t before, you do now.

Give Wendy Support and Get Yourself Inspired!

http://createtoheal.blogspot.com

Check out Wendy’s new blog!  Here’s what she’s doing in her own words and a few of her scribble pictures. She explains the exercises that YOU can try too!

P.S.  Check out the polka-dotted fingernails that coordinate with the bikini top on her blog.

Why Create To Heal?

“Art can be therapeutic.
I am not an Art Therapist, I am simply someone who uses art to help deal with the day to day trials of living with a chronic illness.
My goal is to create something every day! Draw, Paint, Make a Collage, Take a Picture, Create a Recipe…anything.
I may not be able to post every day. However, I will try to post every thing I’ve created. (so some days you may get one day’s worth of creation, other days you may get many.)
When one lives with a chronic illness some days it can be hard to accomplish anything. Having this goal to create something every day, gives me something to strive for. It also gives me an outlet to share how living with a chronic illness affects me.”
 Subscribe to her brand new blog!