Tag Archives: chronic illness

Have a Heart, Give a Gift

Heart disease, not cancer, is the #1 killer of women.  I learned that and other invaluable information on Carolyn Thomas’ My Heart Sisters blog.

Over the years I’ve “stolen” and reposted many a wonderful post from Carolyn Thomas.  Her blog, Heart Sisters, has been one of the few I’ve followed for years.  I have forgotten what led me to her blog but once I read both her compelling stories and the up-to-date information on  women’s health, in particular heart disease, I was a Carolyn-groupie.  

Apparently Johns Hopkins was a groupie too when they asked her to write a book on Living with Heart Disease.  My guess is that her down-to-earth writing coupled with up-to-date research and information appealed to Johns Hopkins as much as it did to me.

Here’s just a sample of info found on Carolyn’s blog:

“Did you know: Women generally fare far worse than men after experiencing a cardiac event? One possible reason is that it can be confusing to make sense of warning symptoms when they do hit. Women are also less likely than our male counterparts to seek immediate help at the first sign of cardiac symptoms. Instead, we end up:”

  • toughing them out
  • waiting to see if they go away
  • blaming them on stress, muscle soreness, indigestion or other less serious non-cardiac causes

Read 12 cardiac symptoms women must never ignore

I can’t say enough good things about Carolyn – you’ll have to read her book and her blog to see for yourself what fabulous advocacy and education Carolyn has provided since her own “widow-maker” heart attack. (Full disclosure:  we are not related, I’ve never met her in person, and I don’t get a kick-back!)

Buy a copy and give the gift of life to a woman you love . . . maybe it’s even yourself

Save 20% when you use the code HTWN when you pre-order the book from Johns Hopkins

Order your copy click here:  Johns Hopkins University Press 

Johns Hopkins University Press is the publisher and here’s a fraction of what has been said about Carolyn’s Book:

[A Woman’s Guide to Living with Heart Disease] gives women the knowledge they need to become their own advocates in a health care system that continues to be weighted against them.”

“This book brings a needed focus to a leading killer of women today and is a must-read for women and their loved ones.”

“If you are a woman, or love a woman, this is a book for you! Cardiovascular disease is the leading killer of women. Here is a book focused on women’s cardiovascular health. It is all here—prevention, diagnosis, and treatment. Read it for the people you love.”

“This work is an important contribution to the discussion about heart attack and misdiagnosis in women. Thomas’s personal story—alongside the stories of millions of other women—provides a needed reminder of recognizing one’s symptoms, avoiding denial, and seeking medical attention. This elegant book is a unique addition to women’s health books and a necessary read for women and the people who care about them.”

Thank you Carolyn for pushing through your own symptoms to write a book of this magnitude.  

 

Invisible Illness – Prayers in search of “Cures”

I’ve written or spoken about my journey with fibromyalgia, the 40+ doctors, tens of thousands of dollars of tests and doctors telling me that nothing was wrong while handing me a psychiatric referral. 

Difference in Reactions to Fibro and Pacemaker

Fibromyalgia: Hysterical Middle-Aged Woman’s Syndrome

This Ted video got my attention.   I hope it gets yours because it’s likely you or someone you know has other invisible disorders such such as fibromyalgia, IBS, migraine, interstitial cystitis, vulvodynia and ME/CFS which affect millions and have been largely ignored by the NIH.

17 minutes

“Jen Brea’s Outrageously Successful Chronic Fatigue Syndrome (ME) TED Talk”

Despite my own struggles, I’ve been blessed with relatively mild symptoms and the ability to lead a fairly high functioning life. Long ago I lost count of all those I know, worse off than me, who have “untreatable” or  invisible illnesses – friends, former clients,  internet blogfriends, children and many who follow my blog  

To all of you who are on similar journeys – – you are in my prayers.  It’s not a cure but it’s all we’ve got . . . for now.

 

 

 

Being tired is exhausting

I look normal, I act normal (relatively normal)However, I feel exhausted much of the time, my body aches from head to toe and my brain sometimes has trouble remembering or concentrating.  Please don’t tell me to exercise more, eat better, try acupuncture or go to a new doctor.  After 20 years I’ve tried just about everything there is to try that I can afford, swallow or legally do.

I don’t even care anymore what you call it: Fibromyalgia, Chronic Fatigue, malingering . . . it’s just tiring being tired much of the time.  I push through it otherwise I’d have no life.  But the price for pushing can be days of crashing so I pick and choose my commitments.

Judy's Journal, Mixed Media, Collage
judy’s Journal, Collage

No one knows what causes it or how to make it better.  Looking back, I think I’ve had it my whole life.  But I’m lucky because it didn’t become full-blown until I was an adult.  For teens and young adults it’s really hard. Read this article by teens and 10 things they want the public to know.   Teens who live with chronic illness and the 10 things they want you to know.

I’ve blogged about it before:

The Mask of Invisibility and me

Fibromyalgia, Dx: Hysterical Middle-Aged Woman’s Syndrome

I prefer not to talk about it, write about it, dwell on it.  It is what it is and I’m blessed that it’s not life threatening.  But today is World Awareness Day for neuro-immune illnesses of ME/Chronic Fatigue (CFS), Fibromyalgia (FM), Lyme disease, and Multiple Chemical Sensitivity (MCS). It’s an opportunity to raise public awareness of these conditions that impact millions all over the world.

It’s a good bet that you or someone you know has one of these invisible conditions . . . if you didn’t before, you do now.

Give Wendy Support and Get Yourself Inspired!

http://createtoheal.blogspot.com

Check out Wendy’s new blog!  Here’s what she’s doing in her own words and a few of her scribble pictures. She explains the exercises that YOU can try too!

P.S.  Check out the polka-dotted fingernails that coordinate with the bikini top on her blog.

Why Create To Heal?

“Art can be therapeutic.
I am not an Art Therapist, I am simply someone who uses art to help deal with the day to day trials of living with a chronic illness.
My goal is to create something every day! Draw, Paint, Make a Collage, Take a Picture, Create a Recipe…anything.
I may not be able to post every day. However, I will try to post every thing I’ve created. (so some days you may get one day’s worth of creation, other days you may get many.)
When one lives with a chronic illness some days it can be hard to accomplish anything. Having this goal to create something every day, gives me something to strive for. It also gives me an outlet to share how living with a chronic illness affects me.”
 Subscribe to her brand new blog!