Perfume not harmless
Hits a bullseye in your brain
Mindshaft of your brain
There’s one way in, no way out
Lost in the black maze
Thank you for the Perfect Poets Award!
I nominate Wendy, Create to Heal – http://createtoheal.blogspot.com/ -for the next Award
Thousands of people have sensitivities to smells aromas but MULTIPLE CHEMICAL SENSITIVITY (MCS) is a debilitating condition.
It looks like a long read but it’s worth understanding this little known condition.
My dear friend Ida sent this NY Times article link (below) to me. She knows first hand the isolation, suffering that comes from having Multiple Chemical Sensitivity, this physically and socially debilitating illness.
(in slide show: click on the far middle right to advance the first slide)
I asked this question: If your house was burning, what would you take with you?
Here’s my original post: https://judithwesterfield.wordpress.com/2011/08/30/do-you-really-know-what-matters-to-you/
Here’s Ida’s comment:
“Well….I to respond to this. I have Multiple Chemical Sensitivity. I have lost everything I own five times and partially 3 more times, in the last 12 years because of mold sensitivity. I wouldn’t wish that on anyone.
I don’t think I’m materialistic, but I carefully and lovingly collected interesting and beautiful things all my life. Not many but enough. I’m not talking about expensive things, but things I treasured that were Artistic and had good lines, good design. A few things I had from my parents. I never went for the Bling, or the Trend. A lot of those things were part of me.
I keep ‘things’ for a very long time….one watch, one hair brush, same tea kettle…..all those years. I can say, oh materials things don’t matter, but it’s what is behind those things. It’s my history. I know some people’s history doesn’t matter. They don’t even read History. I do. It’s really different when it’s not voluntary. I don’t know anyone that walks away from what they own. I also know people who don’t own or collect beautiful things, or good books.
I’ve never bought a coffee maker or microwave, a TV, electric kitchen gadgets. Thank God. Everything I’ve ever owned is carefully selected. I’ve come to the conclusion, that’s it for me. I don’t know anyone, that does that to the extent that I do, but I do, so when I lose everything, suddenly, not by choice it’s devastating and it’s not because I’m materialistic. It’s because I care about me and I value me and everything that was part of me.
Maybe this doesn’t make sense to someone else. I”m now afraid to buy
anything and when I do, I again, do so carefully, with good design, lines. I get that small tea cup from the thrift store that says, “made in Occupied Japan”, or that Vintage Melita porcelain coffee carafe, or those water glasses from France. There I go again. Yes, if I lose them, I will miss them.”
The possible list of symptoms of Multiple Chemical Sensitivity is almost endless – varies from one patient to the next. Also worthy of mention here is the fact that there is no sharp demarcation between the symptoms of MCS and those of ME/CFS/CFIDS/PVFS (myalgic encephalomyelitis – chronic fatigue), but that most sufferers of MCS complain of at least several of the following:
- burning, stinging eyes
- wheezing, breathlessness nausea
- extreme fatigue/lethargy
- poor memory & concentration
- runny nose (rhinitis)
- sore throat, cough
- sinus problems
- skin rashes and/or itching skin
- sensitivity to light & noise
- sleeping problems
- digestive upset
- muscle & joint pain.
The idiopathic or “not understood” nature of MCS means that doctors & others are often highly sceptical about the reality of – and nature of – the MCS condition.
Many features of Multiple Chemical Sensitivity and it’s effects and the way it’s effects are described by the sufferer seem altogether unrealistic, impossible or implausible to a conventional & scientifically trained consultant or GP.
The population at large are often equally sceptical, because the described symptoms (say, headache, joint pains, etc. ) and the externally observable effects ( say, runny nose, watering eyes, etc ), are blamed by the Multiple Chemical Sensitivity sufferer on an invisible chemical or toxin that the average person cannot even detect, much less be affected by !
How can a person really be affected by such a miniscule dose of a toxicant even if such a toxicant IS present? Surprisingly, perhaps, this is one aspect of Multiple Chemical Sensitivity that is very well understood in conventional medicine and it is called Sensitization.
Sensitization is a true allergic reaction to one chemical or irritant and is caused by involvement within the body of mast cells and IgE antibodies. Once sensitized to a particular irritant, a subsequent exposure to even a tiny amount of the same irritant ( even parts per million – ppm – or parts per billion – ppb) can cause an extreme allergic reaction.
Note: one ppm = 0.0001 percent.
These very low levels of irritant will often be totally undetectable to the average person and to them will be totally harmless.
Meanwhile, the main aspect of Multiple Chemical Sensitivity that is NOT fully understood – and that is regarded with such great scepticism – is that the MSC sufferer reacts similarly and in an allergic fashion . . .