I’ve written or spoken about my journey with fibromyalgia, the 40+ doctors, tens of thousands of dollars of tests and doctors telling me that nothing was wrong while handing me a psychiatric referral.
Difference in Reactions to Fibro and Pacemaker
Fibromyalgia: Hysterical Middle-Aged Woman’s Syndrome
This Ted video got my attention. I hope it gets yours because it’s likely you or someone you know has other invisible disorders such such as fibromyalgia, IBS, migraine, interstitial cystitis, vulvodynia and ME/CFS which affect millions and have been largely ignored by the NIH.
“Jen Brea’s Outrageously Successful Chronic Fatigue Syndrome (ME) TED Talk”
Despite my own struggles, I’ve been blessed with relatively mild symptoms and the ability to lead a fairly high functioning life. Long ago I lost count of all those I know, worse off than me, who have “untreatable” or invisible illnesses – friends, former clients, internet blogfriends, children and many who follow my blog
To all of you who are on similar journeys – – you are in my prayers. It’s not a cure but it’s all we’ve got . . . for now.
March 1st will mark two years since I retired. Now that I have all the time in the world I have much more time to procrastinate. During retirement I have fine-tuned my procrastination skills.
I also have a continued quest for self-improvement. In between TV shows and relaxing I squeeze in reading articles and watching videos that inspire me to develop better habits.
Here’s the latest video which I found so inspirational I turned off the TV.
After listening to this Ted Talk I decided to do a trial run before my actual two-year retirement anniversary.
I’m going to treat the things I keep saying I’d like to do like a flooded basement. (you’ll have to watch the video). So! here’s what my emergencies are for this coming week:
- Do something everyday (as opposed to doing nothing)
- Cut out sugar from my eating “habits”.
I’ll let you know next week . . . or two . . . how I did.
“Big Brother is watching you” George Orwell wrote in his novel 1984. In 2014 BIG BRAIN is controlling you. WATCH THIS!!!!!!
“Greg Gage is on a mission to make brain science accessible to all. In this fun, kind of creepy demo, the neuroscientist and TED Senior Fellow uses a simple, inexpensive DIY kit to take away the free will of an audience member. It’s not a parlor trick; it actually works. You have to see it to believe it.“
Long after the original dagger has been wiped clean of blood, wounds of failure, loneliness and rejection often never heal. We learn to cover them up with smiles and long sleeves to keep them hidden from view.
Emotional wounds lie on the surface. They get bumped, scrapped and ripped opened over and over throughout our lives. We habituate to our emotional pain and don’t look for help until our body starts talking to us through physical symptoms.
Many of you who know me well know I often speak in “hyperbole”. All of you know I’m not now exaggerating. Watch this excellent TedTalk.
“We’ll go to the doctor when we feel flu-ish or a nagging pain. So why don’t we see a health professional when we feel emotional pain: guilt, loss, loneliness? Too many of us deal with common psychological-health issues on our own, says Guy Winch. But we don’t have to. He makes a compelling case to practice emotional hygiene — taking care of our emotions, our minds, with the same diligence we take care of our bodies.”
The “stuff” of science-fiction is no longer fiction.
“You may remember neuroscientist Miguel Nicolelis — he built the brain-controlled exoskeleton that allowed a paralyzed man to kick the first ball of the 2014 World Cup. What’s he working on now? Building ways for two minds to send messages brain to brain. Watch to the end for an experiment that, as he says, will go to “the limit of your imagination.”‘
I tend to live in the present moment – not because I am centered nor have I perfected mindfulness. It’s because I have a very lousy long-term memory. You can tell me the same joke over and over and I’ll laugh every time because I never remember the punch line. I don’t remember having already seen a movie or read a book until I get to the end. Details of my life elude me. Turns out I’m blessed by a forgetful remembering-self.
LISTEN to this!!!!!!!! – How we determine what is a painful experience or a pleasurable one; How we create the story of our life.
Meet the mom who started the Ice Bucket Challenge – Great speaker! Inspiring!
“When Nancy Frates’ 29-year-old son Pete hurt his wrist in a baseball game, he got an unexpected diagnosis: it wasn’t a broken bone, it was ALS, and there is no cure. In this inspiring talk, Nancy tells the story of what happened next.”
Did you know your brain creates waste all day and gets rid of waste all night? Not enough sleep may be a key to Alzheimer’s disease research.
“The brain uses a quarter of the body’s entire energy supply, yet only accounts for about two percent of the body’s mass. So how does this unique organ receive and, perhaps more importantly, rid itself of vital nutrients? New research suggests it has to do with sleep.”
Even if your ears are past the age of 7 take a few minutes to listen with your heart – to the message . . . and the music.
Pianist Daria van den Bercken in this talk, she plays us through the emotional roller coaster of Handel’s music — while sailing with her piano through the air, driving it down the street, and of course playing on the stage.
Music is a moral law. It gives soul to the universe, wings to the mind, flight to the imagination, and charm and gaiety to life and to everything. Plato
“We, verily, have made music as a ladder for your souls, a means whereby they may be lifted up unto the realm on high…” The Baha’i World Faith
Music is the shorthand of emotion. Leo Tolstoy
Psalms 95:1 – O come, let us sing unto the LORD: let us make a joyful noise to the rock of our salvation.
Yes, I’m name calling to get your attention. Watch this TO THE END!
Social psychologist Amy Cuddy shows how “power posing” — standing in a posture of confidence, even when we don’t feel confident — can affect testosterone and cortisol levels in the brain. . . .”
ERIN, THANK YOU for telling me about this!!!
Stop! Listen! Smile!
“Childhood is surreal. Why shouldn’t children’s books be? In this charming talk, author Mac Barnett speaks about writing as a doorway to wonder — at any age“
P.S. Who said you couldn’t have a pet whale?
I’d forgotten how I’d lay on a blanket on the front lawn when I was a child finding images in the passing clouds . . . until I saw this:
“You don’t need to plan an exotic trip to find creative inspiration. Just look up, says Gavin Pretor-Pinney, founder of the Cloud Appreciation Society. As he shares charming photos of nature’s finest aerial architecture, Pretor-Pinney calls for us all to take a step off the digital treadmill, lie back and admire the beauty in the sky above.”
“Aimee Mullins was born without fibular bones, and had both of her legs amputated below the knee when she was an infant. She learned to walk on prosthetics, then to run — competing at the national and international level as a champion sprinter, and setting world records at the 1996 Paralympics in Atlanta. At Georgetown, where she double-majored in history and diplomacy, she became the first double amputee to compete in NCAA Division 1 track and field.”
AMAAAAAAAAAAAAAAAZING photography. (SUBTITITLED for Wendy)
“New videography techniques have opened up the oceans’ microscopic ecosystem, revealing it to be both mesmerizingly beautiful and astoundingly complex. Explore this hidden world that underpins our own food chain — in the first-ever TEDTalk given by a fish …
The Plankton Chronicles Project uses state-of-the-art optics to reveal the beauty and diversity of planktonic organisms. It was initiated by Christian Sardet, Noé Sardet and Sharif Mirshak.”