Invisible Illness – Prayers in search of “Cures”

I’ve written or spoken about my journey with fibromyalgia, the 40+ doctors, tens of thousands of dollars of tests and doctors telling me that nothing was wrong while handing me a psychiatric referral. 

Difference in Reactions to Fibro and Pacemaker

Fibromyalgia: Hysterical Middle-Aged Woman’s Syndrome

This Ted video got my attention.   I hope it gets yours because it’s likely you or someone you know has other invisible disorders such such as fibromyalgia, IBS, migraine, interstitial cystitis, vulvodynia and ME/CFS which affect millions and have been largely ignored by the NIH.

17 minutes

“Jen Brea’s Outrageously Successful Chronic Fatigue Syndrome (ME) TED Talk”

Despite my own struggles, I’ve been blessed with relatively mild symptoms and the ability to lead a fairly high functioning life. Long ago I lost count of all those I know, worse off than me, who have “untreatable” or  invisible illnesses – friends, former clients,  internet blogfriends, children and many who follow my blog  

To all of you who are on similar journeys – – you are in my prayers.  It’s not a cure but it’s all we’ve got . . . for now.

 

 

 

How to gain control of your free time

March 1st will mark two years since I retired.    Now that I have all the time in the world I have much more time to procrastinate.  During retirement I have fine-tuned my procrastination skills. 

I also have a continued quest for self-improvement.   In between TV shows and relaxing I squeeze in reading articles and watching videos that inspire me to develop better habits.

Here’s the latest video which I found so inspirational I turned off the TV.

After listening to this Ted Talk I decided to do a trial run before my actual  two-year retirement anniversary. 

I’m going to treat the things I keep saying I’d like to do like a flooded basement.  (you’ll have to watch the video).  So!  here’s what my emergencies are for this coming week:

  1. Do something everyday (as opposed to doing nothing)
  2. Cut out sugar from my eating “habits”.

I’ll let you know next week . . . or two . . .  how I did.

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How to Control Other People with Your Brain

“Big Brother is watching you” George Orwell wrote in his novel 1984.  In 2014 BIG BRAIN is controlling you.  WATCH THIS!!!!!!

“Greg Gage is on a mission to make brain science accessible to all. In this fun, kind of creepy demo, the neuroscientist and TED Senior Fellow uses a simple, inexpensive DIY kit to take away the free will of an audience member. It’s not a parlor trick; it actually works. You have to see it to believe it.

 

Stop Bleeding

Long after the original dagger has been wiped clean of blood, wounds of failure, loneliness and rejection often never heal.  We learn to cover them up with smiles and long sleeves to keep them hidden from view.

Emotional wounds lie on the surface. They get bumped, scrapped and ripped opened over and over throughout our lives. We habituate to our emotional pain and don’t look for help until our body starts talking to us through physical symptoms.

Many of you who know me well know I often speak in “hyperbole”.  All of you know I’m not now exaggerating.  Watch this excellent TedTalk.

“We’ll go to the doctor when we feel flu-ish or a nagging pain. So why don’t we see a health professional when we feel emotional pain: guilt, loss, loneliness? Too many of us deal with common psychological-health issues on our own, says Guy Winch. But we don’t have to. He makes a compelling case to practice emotional hygiene — taking care of our emotions, our minds, with the same diligence we take care of our bodies.”

Brain-to-brain communication has arrived.

The “stuff” of science-fiction is no longer fiction.

“You may remember neuroscientist Miguel Nicolelis — he built the brain-controlled exoskeleton that allowed a paralyzed man to kick the first ball of the 2014 World Cup. What’s he working on now? Building ways for two minds  to send messages brain to brain. Watch to the end for an experiment that, as he says, will go to “the limit of your imagination.”‘

Happiness – how our remembering self hijacks our experiencing self

I tend to live in the present moment – not because I am centered nor have I perfected mindfulness.  It’s because I  have a very lousy long-term memory.   You can tell me the same joke over and over and I’ll laugh every time because I never remember the punch line.  I don’t remember having already seen a movie or read a book until I get to the end.  Details of my life elude me.  Turns out I’m blessed by a forgetful remembering-self.

LISTEN to this!!!!!!!! –  How we determine what is a painful experience or a pleasurable one; How we create the story of our life.

Remember the Ice Bucket Challenge? Find out how it started

Meet the mom who started the Ice Bucket Challenge – Great speaker!  Inspiring!

“When Nancy Frates’ 29-year-old son Pete hurt his wrist in a baseball game, he got an unexpected diagnosis: it wasn’t a broken bone, it was ALS, and there is no cure. In this inspiring talk, Nancy tells the story of what happened next.”